Kristi Harmon and Virginia Maxwell are both rare disease patients and caregivers from South Carolina. Kristi’s family suffers from Cyclic Vomiting Syndrome, while Virginia’s suffers from a skin disorder called Pityriasis Rubra Pilaris. Both lead advocacy groups to support other families with their disease, raise awareness of unmet needs in the rare disease community, and lobby legislators to support policies that can make healthcare more effective and accessible for all. 

Join the VCU Medical Center Health and Wellness Library on Zoom on Feb 5 at noon to learn more about Kristi and Virginia's journeys, how they’ve navigated obstacles faced by the rare disease community, and ongoing efforts that offer hope for solutions.

This program is free and open to all. Registration is required. Registrants will receive a Zoom link to the program on the day of the event.

For more information, email healthlibrary@vcuhealth.org or call (804) 828-2432.

The VCU Medical Center Health and Wellness Library is located in the VCU Health Gateway Building, Ground Floor, Room G-112. Visit us in-person, online, and on Facebook.